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| Noah in the demo chair with me and family ! |
Noah Wall is 3 and a half years old, he was born with Spinabifida and is paralysed from his chest down. He was also born with only 2% of his brain due to a porencephalic destructive cyst. He currently has both legs in plaster after having reconstructive surgery on both of his feet. After his operation a few weeks ago he had an MRI scan and Doctors were amazed that his brain has expanded to a size which is close to normal. This would account for his phenomenal progress and means he has the potential to have a wonderful life ahead of him.
Despite this however, Noah will always have a life threatening condition in the form of hydrocephalus. This means he will have to undergo a number of operations throughout his life, to lengthen the tube that drains the excess brain fluid, to stop pressure building in his head.
So that is Noah in a couple of paragraphs which is pretty unfair but a tiny clue into why i'm going to run The London Marathon next year. In a nutshell, Noah needs a very wizzy wazzy electric wheelchair and it is going to cost over £18k, There are very few families that can afford such a purchase so I am going to pester and persuade as many people as possible to sponsor me to run 26.2 miles on April 24th 2016.
I am 50 years old and havent run more than 5 miles in the last 30 years up until a few weeks ago when my training runs ticked up to 6 miles, so its going to be a struggle but not as much of a struggle it is for Noah to haul himself around his house without his wheels, so that will be in my thoughts when it hurts a lot!
Shelly, Noahs mum has persuaded me to write some stuff here because she is convinced someone might read it - I am less convinced so if you have got this far then let me know or it might not go far from here !
