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| Noah in the demo chair with me and family ! |
#HugsForNoah is what it is all about. Little Noah Wall grabs your heart
and hangs onto it so you have to give him a hug and smile back, because
he is always smiling.
Noah Wall is 3 and a half years old, he was
born with Spinabifida and is paralysed from his chest down. He was also
born with only 2% of his brain due to a porencephalic destructive cyst.
He currently has both legs in plaster after having reconstructive
surgery on both of his feet. After his operation a few weeks ago he had
an MRI scan and Doctors were amazed that his brain has expanded to a
size which is close to normal. This would account for his phenomenal
progress and means he has the potential to have a wonderful life ahead
of him.
Despite this however, Noah will always have a life
threatening condition in the form of hydrocephalus. This means he will
have to undergo a number of operations throughout his life, to lengthen
the tube that drains the excess brain fluid, to stop pressure building
in his head.
So that is Noah in a couple of paragraphs which is pretty unfair but a
tiny clue into why i'm going to run The London Marathon next year. In a
nutshell, Noah needs a very wizzy wazzy electric wheelchair and it is
going to cost over £18k, There are very few families that can afford
such a purchase so I am going to pester and persuade as many people as
possible to sponsor me to run 26.2 miles on April 24th 2016.
I am 50 years old and havent run more than 5 miles in the last 30 years
up until a few weeks ago when my training runs ticked up to 6 miles, so
its going to be a struggle but not as much of a struggle it is for Noah
to haul himself around his house without his wheels, so that will be in
my thoughts when it hurts a lot!
Shelly, Noahs mum has persuaded me to write some stuff here because she
is convinced someone might read it - I am less convinced so if you have
got this far then let me know or it might not go far from here !
